Neurofibromatosis type 1 (NF1), the Community - RareConnect

Neurofibromatosis type 1 (NF1), the Community - RareConnect

RARECONNECT

Online Communities for Rare Disease Patients Join the international online community for people living with neurofibromatosis type 1 Welcome - Neurofibromatosis type 1 (NF1) Community What is Neurofibromatosis type 1 (NF1) ? Neurofibromatosis type 1 (NF1) is a clinically heterogeneous, neurocutaneous, genetic disorder characterized by café-au-lait spots, iris Lisch nodules, axillary and inguinal freckling, and multiple neurofibromas. Latest Member Stories NF children - how it began by claas published 7 days ago No comment Hello, dear NF community My name is Claas Röhl. I'm pleased to welcome you here to the RareConnect NF group. This group emerged through co-ope... More Rhea Sophia by claas published 7 days ago No comment However, more and more brown spots suddenly started to appear on her skin. We got worried, so we began to look for information on the internet. At ... More Partners and Patient Groups RareConnect is a joint venture of EURORDIS and NORD. The following patient groups are official partners of this community. NF Kinder – Verein zur Förderung der Neurofibromatoseforschung Österreich   British Columbia Neurofibromatosis Foundation (BCNF)   Groupe d'Entraide Romand pour les Neurofibromatoses More Latest Neurofibromatosis type 1 (NF1) Community Activity Welcome to the NF1 Communitytopic published 6 days ago  show transcript Orphanet: Neurofibromatose type 1document published about 1 month ago  show transcript Practical Genetics: Neurofibromatosis 1document published about 1 month ago  show transcript Neurofibromatosis type 1: a multidisciplinary approach to caredocument published about 1 month ago  show transcript Diagnose NF1 – Was tun?document published 2 months ago  show transcript Über Neurofibromatose 1 Informationen für Eltern, Betroffene, Ärzte und Medizinerdocument published 2 months ago  show transcript Über Neurofibromatose 1 Informationen für Teenagerdocument published 2 months ago  show transcript